A woman whose husband was diagnosed with Parkinson’s Disease when he was just 26 is making sure his legacy never disappears.
Tom Isaacs, of The Green, Croxley, died of a virus last May, having spent most of his life battling the incurable illness.
But his wife, Lyndsey Isaacs, is determined to honour the Cure Parkinson’s Trust, which he set up from his front room to fund research in 2005.
She said: “He was the most optimistic person I’ve ever met. He was fantastic, driven, mad, passionate and intelligent.
“He was a typical make and would make you laugh at the toughest of times. He really did use his humour beautifully to put people at ease.”
The disease causes a tremor, rigid muscles and although medication kept his symptoms at bay for the most part, he did suffer from ‘off periods.’
It meant he could sometimes appear drunk – but he always used his sense of humour to get him through it.
Passionate about finding a cure, he was determined to give other people in his shoes hope.
“Medicine always talks about false hope because it’s an incurable disease,” Lyndsey added. “But when you’re diagnosed with Parkinson’s, the only thing you have is hope.
“And to him, it didn’t matter where the cure came from. As long as it came.”
The Cure Parkinson’s Trust has gone from strength to strength from its offices in Rickmansworth, and is now recognised globally.
To date, it has raised £7.5million.
Lyndsey is now doing a charity walk to raise money for Cure Parkinson's UK.
Joined by her friend, Hanya, and her dog, Indi, she will walk 200 miles around the coast of Scotland in Tom's memory.
She will recreate a walk Tom took back in 2002, after his diagnosis.
"I’m looking forward to walking the route he took back in 2002, and seeing the beautiful places in Scotland that we didn’t see together the first time round," she said.
For more, see https://www.cureparkinsons.org.uk/.
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